Able to live, laugh and love

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Title Able to live, laugh and love
Author Wain, Veronica
Journal Name Media Culture Journal
Editor Liz Ferrier and Viv Muller
Year Published 2008
Place of publication Brisbane
Publisher QUT Creative Industries
Abstract The autobiographical documentary film “18q – a valuable life”, is one attempt to redefine the place of disability in contemporary western society. My work presents some key moments in my life and that of my family since the birth of my youngest child, Allycia in 1995. Allycia was born with a rare genetic condition affecting the 18th chromosome resulting in her experiencing the world somewhat differently to the rest of the family. The condition, which manifests in a myriad of ways with varying levels of severity, affects individuals' physical and intellectual development (Chromosome 18, n. pag.). While the film outlines the condition and Allycia's medical history, the work is primarily concerned with the experiences of the family and offering an alternate story of disability as “other”. Drawing on Rosemarie Garland Thomson's notion of shape structuring story ("Shape") and Margrit Shildrick's discussion of becoming vulnerable as theoretical foundations, I reflect on how the making of the film has challenged my previously held views about disability and ultimately about myself.
Peer Reviewed Yes
Published Yes
Publisher URI http://journal.media-culture.org.au/index.php/mcjournal
Alternative URI http://journal.media-culture.org.au/index.php/mcjournal/article/viewArticle/54
Copyright Statement Copyright remains with the author 2008 . For information about this journal please refer to the publisher's website or contact the author. Articles published in M/C Journal are open access and distributed under a Creative Commons Attribution License http://creativecommons.org/licenses/by-nc-nd/3.0/
Volume 11
Issue Number 3
Edition Online
Page from 1
Page to 12
ISSN 1441-2616
Date Accessioned 2009-03-05
Language en_AU
Faculty Queensland College of Art
Subject Film and Television
URI http://hdl.handle.net/10072/24908
Publication Type Journal Articles (Refereed Article)
Publication Type Code c1

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