The Experiences of Maternal Care-giving for Children Undergoing Liver Transplantation - A Pilot Study

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Title The Experiences of Maternal Care-giving for Children Undergoing Liver Transplantation - A Pilot Study
Author Chen, Ya-Huei; Huang, Yu-Ping; Kellett, Ursula Marie; Lin, Chieh-Chung
Journal Name Chang Gung Nursing
Year Published 2009
Place of publication Taiwan
Publisher Chang Gung University
Abstract The aim of this qualitative research was to explore the experiences of maternal care-giving for children undergoing liver transplantation due to biliary atresia. Three voluntary mothers were recruited from a medical center in central Taiwan. Each participant was interviewed three to four times and each interview lasted thirty to sixty minutes. All interviews were tape-recorded and transcribed and data analysis was guided by the hermeneutic circle. Three aspects were emerged from the mothers' caregiving experiences. The first aspect was named “before liver transplantation” and was characterized by accepting the child's disease, learning and integrating new knowledge and skills into daily care-giving. Self-questioning her own caring ability, and striving for hope of a successful liver transplant. The second aspect was named “during liver transplantation and hospitalization” and was characterized by feeling helpless whilst waiting outside the operation room, and difficulties in satisfying the donor's and the recipient's needs simultaneously and preserving a high quality of care for her child in the intensive care unit, and concern for an individualized care of her children. The final aspect was named “after liver transplantation” and was characterized by lacking complete support health professionals, being protective of the child, and feeling grateful that the child regained health. Implications for clinical practice are discussed in terms of the assessment of the mothers' apprehension and needs. Appreciation of the mother's motivation to dedicate herself to care-giving for her child is realized by understanding what matters and concerns her during the process of caring.
Peer Reviewed Yes
Published Yes
Publisher URI http://www.cgu.edu.tw/eng_cgu/index.htm
Copyright Statement Copyright remains with the authors 2009. The attached file is posted here with permission of the copyright owners for your personal use only. No further distribution permitted.
Volume 20
Issue Number 3
Page from 306
Page to 318
ISSN 1026-7301
Date Accessioned 2010-02-26
Date Available 2010-06-02T09:47:05Z
Language en_AU
Research Centre Griffith Health Institute; Centre for Health Practice Innovation
Faculty Griffith Health Faculty
Subject Nursing
URI http://hdl.handle.net/10072/29749
Publication Type Journal Articles (Refereed Article)
Publication Type Code c1

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