Grandparenting a child with a disability: An emotional rollercoaster

Abstract

As our knowledge about the experiences of grandparents when their grandchild has a disability is extremely limited, the purpose of this research was to explore the emotional journal of Australian grandparents. This qualitative study utilised purposive sampling and semi structured in-depth interviews to explore the experiences of 22 Australian grandparents whose grandchild had been diagnosed with a disability. Three key themes characterized grandparents emotional journey: adjusting: (the transition from anger to acceptance), the 'double grief'' :(sadness about what might have been for both their child and their grandchild and pride in family : (pride in family's ability to adjust to the challenges of the situation). As the first Australian study to explore the experiences of grandparents when their grandchild has a disability, the research provides important new knowledge about the emotional journey for grandparents. Unlike overseas research, Australian grandparents view themselves as being there to support their own children, rather than "holding the family together". The findings will provide current policy debates about the role of grandparents and highlight the importance of support services that help facilitate grandparents' role within their family